Morality of preimplantation genetic diagnosis (PGD)

This report examines the morality of preimplantation genetic diagnosis (PGD), and points out that “the goal of eliminating embryos and fetuses with genetic defects carries the unspoken implication that certain ‘inferior’ kinds of human beings—for example, those with Down syndrome—do not deserve to live.”(3) Of course the use of these technologies will remain voluntary, but “its growing use could have subtly coercive consequences for prospective parents and could increase discrimination against the ‘unfit’.”(4) The report says that there is the prospect of “diminished tolerance for the ‘imperfect,’ especially those born with genetic disorders that could have been screened out,” and as a result, disabled children and their parents might be gazed at with unspoken questions, “Why were you born?” and “Why did you let him live?” In the end, “it may become difficult for parents to resist the pressure, both social and economic, of the ‘consensus’ that children with sufficiently severe and detectable disabilities must not be born.”(5)

Their discussion reminds me of voices of Japanese disabled activists. In 1972, disabled people with cerebral palsy began a movement to fight against the government’s effort to introduce a special clause for selective abortion into the Eugenic Protection Law. They harshly criticized the government policy to annihilate disabled babies by way of prenatal diagnosis and selective abortion. They also criticized ordinary non-disabled people’s latent “egoism,” the egoism to think that disabled people do not deserve to live in our society. Disabled activists thought that our society was filled with this kind of discriminative consciousness, and that this hidden consciousness was the real problem of selective abortion.

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Painless Civilization and Fundamental Sense of Security
(2005)
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